Shocking Epilepsy Discrimination Happens in Hobart

The World Health Organisation says “the social consequences of epilepsy are often more difficult to overcome than the seizures themselves.” Which is something twenty-four year old Harry Adams from Glenorchy knows all too well.

Since developing epilepsy at 11 years of age, Harry experiences around 3 seizures each week and has been unable to control them with medication.

Seizures of this frequency hinder his lifestyle and employment options, but the worst thing for Harry is the discrimination he encounters.

“An experience I will never forget happened four years ago when I was in a chain store in a suburban Hobart shopping centre to buy a shirt to wear for a job interview.

“At the checkouts I suddenly fell to the ground having a seizure. I don’t remember what happened next but apparently a lady bent down to help me and my arms which were jerking as they do during my seizures nearly hit her. When I came too I was in a room with 2 policemen, a security guard and the store manager stood over me,” said Harry.

None of them would believe he was epileptic and he was very nearly charged with assault. He also never made it to that job interview.

The next day Harry and his mum took a doctor’s letter to the store manager but he was never given an apology and to this day is only allowed in the store under supervision. “Every time I even go into that shopping the security guards follow me around. It’s like I’m a criminal,” he said.

Harry’s experience is sadly not uncommon. Lance Franklin from the Sydney Swans experienced discrimination when onlookers assumed he was under the influence of drugs or alcohol whilst having a seizure. Radio and TV presenter Ben Fordham, rugby legend Wally Lewis and water polo champion Luke Quinlivan kept their epilepsy hidden for years because of the stigma associated with it.

Epilepsy Tasmania Executive Officer Mr Phil Baker says there remains low community awareness and understanding of epilepsy.

“Research suggests the social stigma and misconceptions that surround epilepsy result in many people not disclosing their condition and then missing out on the support they need,” he said.

March is International Epilepsy Awareness Month and aims to encourage people to talk about epilepsy and remind those who live with seizures that they are not alone.

“We are asking Tasmanians to help end the stigma of epilepsy by hosting a purple fundraising event at their school or work; purchasing merchandise from our online shop; making a donation; or participating in our social media awareness campaign,” said Mr Baker.

Epilepsy Tasmania will have a stall this Saturday at the Salamanca Market in Hobart.
Epilepsy Tasmania Executive Officer Mr Phil Baker