By Guy Barnett
Wednesday 24 October 2012
500 die each year from motor neurone disease said Guy Barnett Ambassador for Motor Neurone Disease Australia, at a conference in Launceston today.
“More than one Australian dies every day from motor neurone disease.
“We have more than 20 Tasmanians living with MND and an estimated 1400 in Australia currently. MND progresses at different rates but most people with the disease die within 2 to 3 years, he said.
“For each person diagnosed with the disease an estimated 14 members of their family and friends will live with the impact forever. MND touches the lives of so many people.
MND care, management and achieving best practice are key issues that are to be addressed at the conference, he said. The health professionals and service providers are incredibly important to the people involved and as an organisation we are indebted to them for their support. Hopefully our conference will assist them in doing their job even better.
“Our organisation raises and then distributes $1 million each year towards vital research. We will not give up in our support to defeat this disease which has no known cause and no known cure,” Mr Barnett said.
Guy Barnett presented a welcome address to the MNDA – Getting it Right, Supporting people living with MND conference at the Tramsheds in Launceston this morning.
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